What are Your Experiences, Perspectives, and Needs as a Caregiver of a Child with Special Needs?

WEBLINK TO SURVEY:

https://forms.office.com/r/evmVHKiMZ7

Thank you for taking the time to complete the attached questionnaire regarding your experiences, perspectives, and needs as a parent of a child that has unique and special needs.  We believe that the information you provide will serve as a benefit in multiple ways!  First, and most importantly, we want to ensure that the caregivers that we work with have access to the support, services, resources, and/or information that they may need, and hope that the details we obtain from parents will guide improvements in our services for families and enhance the quality and accessibility of care at Beacon Pediatric Behavioral Health.  If you would like a follow-up session with the directors at Beacon Pediatric Behavioral Health to review your responses and discuss how we can best serve and support you, please indicate this at the end of your measure and please ensure you include your information and your child’s information on the form.

Your completion of this measure will also serve a potentially broader purpose in improving care for other parents of children with special needs.  We are excited to share that the executive director at Beacon Pediatric Behavioral Health- Dr. Adrienne L. DeSantis King, PhD, BCBA-D, the assistant director at Beacon Pediatric Behavioral Health- Dr. Paras Nabizadeh, PsyD, BCBA-D, and one of our amazing behavior analysts at Beacon Pediatric Behavioral Health- Mrs. Emily Reeves, BCBA, have been chosen by the Florida Association of Behavior Analysts (FABA) to present at the FABA conference in September 2025 on this very topic!  We hope to compile the results of multiple surveys in an anonymous and confidential manner, so that we might help to educate other providers about parent perceptions and experiences, in order to improve the effectiveness of their work with caregivers as well.  If you are interested in having a copy of the final presentation emailed to you once complete (including a summary of anonymous obtained data), please indicate this request at the end of the survey and ensure that you provide your name and your child’s name on the form.

By completing this survey, you are being asked to allow your responses to be used anonymously and confidentially as part of the FABA presentation. All information will be de-identified so that no individual participant can be personally identified and data will be presented in aggregate forms (e.g., averages, ranges, frequency, etc.).  At no time will your name or any personally identifying information be associated with any of the responses.  If you prefer to complete the survey without including your name or your child’s name, you may do so; however, please understand that we will not be able to follow up with you or provide a copy of the presentation, as we will not be able to identify which survey is yours.

Completing this survey is entirely voluntary and you may choose not to answer any question you do not wish to.  Additionally, you may change your mind about completing the questionnaire at any time.  Your decision to complete this survey (or not) will have no effect on any services you or your child receive; however, by completing the survey, we do hope to be able to better serve you and meet your needs to the best of our ability. 

By proceeding with the survey, you acknowledge that you have read and understood the details above, and you consent to your anonymous and confidential data being used for presentation purposes.  If you have any questions about the survey or how this information may be used, please contact the director of Beacon Pediatric Behavioral Health at the contact information listed below.

PLEASE COMPLETE AND RETURN THE SURVEY NO LATER THAN FRIDAY 8/8/25.

Once you complete the attached survey, please provide the survey to your child’s therapist to provide to the directors at Beacon Pediatric Behavioral Health (we encourage you to enclose it within an envelope to maintain your confidentiality if you wish).  If you prefer, you may also complete the measure electronically (via the weblink listed below), complete it via word document, and/or scan and send the survey via email, text, or fax to the contact information below.  Only the executive director and assistant director will retain access to your completed survey and responses. 

Thank you!

CONTACT INFORMATION

Executive Director: Adrienne L. DeSantis King, PhD, BCBA-D, Licensed Psychologist, Board Certified Behavior Analyst, Doctoral

Email: DeSantis@beaconpediatric.com

Cell (text): (904) 800-8543

Assistant Director: Paras Nabizadeh, PsyD, BCBA-D, Licensed Psychologist, Board Certified Behavior Analyst, Doctoral

Fax: (904) 900-7732

WEBLINK TO SURVEY: https://forms.office.com/r/evmVHKiMZ7